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Rare Disease UK, new project for young people

Date: 26 Jun, 2017  No Comments  ASUK Author

Rare Disease UK are coordinating a new project to find out more about children and young people’s experiences of living with a rare, genetic or undiagnosed condition. “This project will use a range of flexible and fun activities to engage with patients aged 5-17 and their siblings. These activities will take place at events coordinated