News, Views and Useful Links… May 2019 edition OUT NOW!

Welcome to your May edition, of News, Views and Useful Links.

 

In this May edition we have a full round up for you, including Ann and Alex jetting off to the Alstrom Syndrome International conference in the USA!

and HOT OFF THE PRESS

ASUK are hosting a family event later this year, full of useful information, activities and interactive workshops, something for everyone! We would love to hear from you about what you would like at the event and whilst we get stuck into the planning, we’d love for you to share your thoughts with us about what you would like to see or do. You can find full information in the e-newsletter.

 

You can view the News, Views and Useful Links HERE