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Invitation to Inaugural Lecture: Alstrom Past, Present and Future

Date: 13 Apr, 2023  No Comments  Alstrom Admin

In celebration of Alström Syndrome UK turning 25, AS Global is pleased to announce the world’s first annual lecture all about Alström Syndrome. Alström Syndrome Past, Present and Future. You are invited to this, the first inaugural Lecture all about Alström Syndrome. This free virtual lecture will investigate the history of Alström Syndrome, what progress


AS Global ‘Managing and Reviewing Medication’ Webinar

Date: 13 Mar, 2023  No Comments  Alstrom Admin

Managing and Reviewing Medication AS Global is holding it’s next webinar all about Medications… What matters to you as a patient and what matters to Moms, Dads and Carers of children affected by Alström Syndrome. Antonio Ochoa-Ferraro, who is a Specialist Pharmacist from University Hospitals Birmingham NHS Foundation Trust England, will be discussing managing medicines. Come


People Power!

Date: 08 Feb, 2023  No Comments  Alstrom Admin

A Truly Accessible World for Everyone – People Power! Imagine for a moment – that you walk into your usual supermarket and every item has blank labels on them, and you can’t tell what anything in the boxes, tins and packaging is! Well, welcome to the world for those who are affected by visual impairment…


Winter newsletter is out now!

Date: 10 Jan, 2023  No Comments  Alstrom Admin

Pop your feet up for five minutes and read about the latest ASUK news… Including how to get involved next year in ASUK turning 25 and plenty of useful resources and top tips to help families throughout the cost of living crisis. You can download your copy HERE you can also read a plain text document HERE


ASUK Turns 25!

Date: 14 Dec, 2022  No Comments  Alstrom Admin

ASUK will be having a silver anniversary year. ASUK will be 25 years old next year!! – it is going to be a year of get togethers and celebrations starting with a family gathering in the UK in April. Join in! We are launching the ‘Rare Moments’ Art Exhibition You are all invited to grab


Summer Newsletter is Out Now!!

Date: 05 Oct, 2022  No Comments  Alstrom Admin

It may feel like Summer is a distant memory – but here comes the ASUK Summer newsletter – full of uplifting articles of what our families have been up to over the Summer… There have been many things to celebrate such as Lexi and Adam’s wedding – HUGE congratulations to you both! There have been