#AlstromSyndrome


Be a Rare Champion!

Date: 01 Jul, 2019  No Comments  ASUK USER

Can you remember when we gathered together on our bikes to ride from Torquay to Birmingham, an amazing 200 miles to raise money and awareness of Alstrom Syndrome or when Nichola Martland along with her friends and family persuaded her friend to be waxed!! Eeekkk!! We rely on your continued generosity and support to continue


Accessible Travel Lounge Opens!

Date: 11 Jun, 2019  No Comments  ASUK USER

Rail passengers using Birmingham New Street Station can now use a new assisted travel lounge which opened on the 10th June 2019. The lounge was provided by Network Rail as part of their ‘Railway Upgrade Plan’ and was designed with the guidance of Birmingham New Street’s accessibility forum, which includes people with disabilities, their carers


Disabled Blue Badge Rules are Changing

Date: 10 Jun, 2019  No Comments  ASUK USER

Biggest overhaul to the Blue Badge Scheme Did you know that the Blue Badge scheme is to undergo the biggest changes since the 1970s? From April 2019, the scheme will be expanded to include people with what is often described as ‘hidden disabilities’, such as mental health issues or autism. Automatic entitlement to the Blue


News, Views and Useful Links… May 2019 edition OUT NOW!

Date: 24 May, 2019  No Comments  ASUK USER

Welcome to your May edition, of News, Views and Useful Links.   In this May edition we have a full round up for you, including Ann and Alex jetting off to the Alstrom Syndrome International conference in the USA! and HOT OFF THE PRESS ASUK are hosting a family event later this year, full of


GAAD – Go Mouseless!!

Date: 16 May, 2019  No Comments  ASUK USER

16th May 2019 Today marks the eighth Global Accessibility Awareness Day #GAAD. The day aims to get everyone talking, thinking and learning about how to make digital technology accessible and inclusive for all people affected by different disabilities. Having accessible technology on our websites, mobile phones and web services such as Twitter and Facebook is


Mental Health Awareness Week 2019

Date: 14 May, 2019  No Comments  ASUK USER

Hosted by the Mental Health Foundation,  Mental Health Awareness Week takes place from 13-19 May 2019. The theme this year is Body Image – how we think and feel about our bodies. Body image issues can affect all of us at any age. During the week the Mental Health Foundation are publishing new research and campaigning