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Date: 20 Mar, 2025 Press Release Alström Research Developments In October 2024, the Alström Syndrome UK (ASUK) Medical and Scientific Advisory group (MSAG) met to discuss progress in Alström Syndrome (AS) research and to explore next steps. Members of the group also stayed on to join the Alström Syndrome Family Conference and listened to our community share their thoughts,
Rare Disease Day takes place on the last day of February every year to raise awareness about rare diseases and their impact on patients lives. This year we launched the AS Community ‘Off the Record’ podcasts and our Chief Executive, Kerry Leeson-Beevers (pictured below on the right) headed off to Westminster! She also met up
Exciting Research Opportunity: Investigating Neuropathy and Ophthalmic Biomarkers in Alström Syndrome We are pleased to share an exciting opportunity to take part in a ground-breaking research study led by Professor Tarek Hiwot from Queen Elizabeth Hospital Birmingham and Professor Mitra Tavakoli from the University of Exeter. This study aims to better understand and assess pain and neuropathy in