Our Care Coordinator, Clair Pudaruth is bringing parents and carers of those affected by Alström Syndrome in the UK together, to share their experiences, insights and discover ways we can support one another.
In these online informal chats, parents and carers can chat together about all things Alström and support one another.
Please get in touch with Clair if you would like to be involved by email at Clair.pudaruth@alstrom.org.uk or give her a call on 07825 384362
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