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Date: 18 Dec, 2024 Wising you all a lovely time over the festive period. Grab something warm to drink and take 5 minutes to read these uplifting family stories, updates from the conference and how to stay well over the winter period in our latest Winter newsletter. Please download your PDF version HERE or a plain text version HERE Please
We have a special treat for you… At the recent ASUK Conference, Aisha from the AS Culture Family Forum got us all in the Christmas spirit by singing Mariah Carey’s All I want for Christmas! …and here it is, just click on the link below so you can watch too… Wishing you all a very
Supporting ASUK at Christmas. With the cost of postage going through the roof and us all looking for ways to help and support one another over the festive period… Why not give a donation instead of sending Christmas cards this year… and bring joy to families and individuals affected by Alström Syndrome across the UK.
Journey to Diagnosis Report Let’s set the scene, the joy of having your first born turns to despair as you know something just isn’t quite right. They have an un-controllable hunger, they are gaining weight at a rapid rate and the wobbly eyes and shying away from the light, which you thought was normal for
Here comes the ASUK Summer newsletter – full of uplifting family stories, and join us in celebrating 9 years of the Children in Need project, discover family grants available, read research updates and much , much more. You can download the pdf newsletter HERE or a plain text version HERE Don’t forget to book onto
ASUK Conference 2024: Together Again – Connecting together to share experiences, knowledge and hope for the future When: 12th October 2024 Where: 4* Mercure Birmingham West Hotel, Birmingham Road, West Bromwich B70 6RS The theme of this year’s get together is Togetherness! ASUK are super excited to bring the AS community together again, after