Author
Date: 18 Dec, 2024 Wising you all a lovely time over the festive period. Grab something warm to drink and take 5 minutes to read these uplifting family stories, updates from the conference and how to stay well over the winter period in our latest Winter newsletter. Please download your PDF version HERE or a plain text version HERE Please
We have a special treat for you… At the recent ASUK Conference, Aisha from the AS Culture Family Forum got us all in the Christmas spirit by singing Mariah Carey’s All I want for Christmas! …and here it is, just click on the link below so you can watch too… Wishing you all a very
Supporting ASUK at Christmas. With the cost of postage going through the roof and us all looking for ways to help and support one another over the festive period… Why not give a donation instead of sending Christmas cards this year… and bring joy to families and individuals affected by Alström Syndrome across the UK.
Journey to Diagnosis Report Let’s set the scene, the joy of having your first born turns to despair as you know something just isn’t quite right. They have an un-controllable hunger, they are gaining weight at a rapid rate and the wobbly eyes and shying away from the light, which you thought was normal for
Here comes the ASUK Summer newsletter – full of uplifting family stories, and join us in celebrating 9 years of the Children in Need project, discover family grants available, read research updates and much , much more. You can download the pdf newsletter HERE or a plain text version HERE Don’t forget to book onto
Grants for Holidays and Day Trips Now we are approaching summer and hopefully we get some sunny weather, you may be looking for things to do. We know how expensive summertime can be so we have put together some information below that may help. Please be aware that lots of these grant applications are only