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Melissa joins the ASUK Team We have the fantastic news, that Melissa Crowland who many of you will know as one of our Trustees has now joined our ASUK team as our Wellbeing Coordinator. This will mean Melissa will now step-down from the Board of Trustees but will now have a more direct role supporting
LifeArc launches £40m research centres to hopefully unlock new tests and treatments for people living with rare diseases The aim of the 4 new LifeArc Translational Centres for Rare Diseases, is that people living with rare conditions will get access to improved tests and treatments. Bringing together leading rare disease scientists and specialists, these virtual
Wising you all a lovely time over the festive period Grab something warm to drink and take 5 minutes to read these uplifting family stories in our latest Winter newsletter. Please download your PDF version HERE Please get in touch with Catherine Lewis if you would like an article to be included in our
Invitation to the ASUK Annual General Meeting You are invited! Alström Syndrome UK are pleased to announce our Annual General Meeting will take place virtually on Wednesday 22nd November 2023 from 7-8pm (GMT, UK time). The Board of Trustees and Chief Executive will all be in attendance. At the AGM we will celebrate
Invitation to Inaugural Lecture: Alstrom Past, Present and Future
Date: 13 Apr, 2023
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Alstrom Admin
In celebration of Alström Syndrome UK turning 25, AS Global is pleased to announce the world’s first annual lecture all about Alström Syndrome. Alström Syndrome Past, Present and Future. You are invited to this, the first inaugural Lecture all about Alström Syndrome. This free virtual lecture will investigate the history of Alström Syndrome, what progress
Managing and Reviewing Medication AS Global is holding it’s next webinar all about Medications… What matters to you as a patient and what matters to Moms, Dads and Carers of children affected by Alström Syndrome. Antonio Ochoa-Ferraro, who is a Specialist Pharmacist from University Hospitals Birmingham NHS Foundation Trust England, will be discussing managing medicines. Come