Latest News


Hot off the press…Winter Newsletter, out now!

Date: 20 Nov, 2020  No Comments  Alstrom Admin

As the weather is beginning to get crisp and cold, grab something warm and take 5 minutes to read our latest newsletter. Filled with lots of stories of what the Alstrom Community has been up to and how ASUK has been supporting families through these difficult times. Find out how you can register for the


Time to Talk – Organ Donation

Date: 09 Sep, 2020  No Comments  Alstrom Admin

To coincide with Organ Donation Week from the 7th – 13th September 2020,  we would like to shine a spotlight on Organ Donation – looking at the right information to help you make the right choices for you and your family. Sifting through the myths and getting to the facts of the matter. The NHS


Hot off the press… Summer newsletter out now!

Date: 17 Aug, 2020  No Comments  Alstrom Admin

As the weather is hotting up, pop your feet up, grab something chilled and take 5 minutes to read our latest newsletter.  Check out Melissa cooking up a storm in the kitchen and read how equipment is making a real difference in our families lives. You can download your pdf copy HERE or as a word


Big Eid – Celebrations!

Date: 24 Jul, 2020  No Comments  Alstrom Admin

Time to celebrate! On Friday 31st July Muslims around the world will be celebrating Eid Ul-Adha, the second of the annual Eid festivals, referred to as ‘Big Eid.’ This festival occurs directly after the month of Hajj in the Islamic Calendar. Hajj is the great Pilgrimage every Muslim must attend once in their lifetime, it


Have your say…

Date: 30 Jun, 2020  No Comments  Alstrom Admin

Have your say…  As you know the world has changed as we know it, with everything now becoming virtual and that has included our multidisciplinary clinics too… In June 2020, NHS England facilitated a consultation to learn more about patients experience of telemedicine clinics, 3 AS patients contributed to the telephone consultation and as you


Connect together for the Healthy Minds, Healthy You webinar

Date: 09 Jun, 2020  No Comments  Alstrom Admin

Join us and connect together Healthy Minds, Healthy You Webinar   On Thursday 22nd October 2020 we will be hosting a webinar with Anne-Marie Walker and Sarah Turner, both Psychologists who are part of our Alstrom Syndrome clinical service. They will be giving an insight into how we can look after our mental wellbeing during