Global Genes Summit 2018

ASUK along with 800 other rare disease organisations, patients and advocates attended the Global Genes Summit in California between 3-4th September this year. Global Genes was founded in 2008 with the goal of helping families affected by rare disease connect with tools, resources, and much needed support, helping eliminate the challenges of rare disease. The summit took place over 2 days and provided a fantastic opportunity to collaborate with our peers and mentors, but for also to listen to an amazing selection of inspirational speakers. For families interested in getting involved and supporting this organisation or wanting to find out more, refer to their website which also has some excellent resources and daily news from the rare disease community: https://globalgenes.org/