Have your say…


Have your say…

Date: 30 Jun, 2020  No Comments

Have your say… 

As you know the world has changed as we know it, with everything now becoming virtual and that has included our multidisciplinary clinics too…

In June 2020, NHS England facilitated a consultation to learn more about patients experience of telemedicine clinics, 3 AS patients contributed to the telephone consultation and as you can see from the results there were pros and cons expressed by clinicians, patients and patient led organisations including ASUK.

Please click HERE to view the results.

These discussions looked closely at what has been working well and what hasn’t worked so well and ways we can ensure the future support and clinical services offered can run as smoothly as possible for everyone involved.

The initial discussions have proved fruitful with home monitoring equipment being ordered for families to monitor their health from home. These are hopefully be being distributed to families over the next few months.

If you would like to provide any feedback about how you have found the tele-medicine clinics, please get in touch with Catherine by email catherine.lewis@alstrom.org.uk