Donations and Awards

Alström syndrome UK is a charity supported by donations.

A HUGE THANK YOU to everyone who continues to support our great cause! The numbers of people being diagnosed with Alström Syndrome is increasing so please get in touch if you would like help to arrange a fundraising event.

Thank you to the following organisations and individuals who support ASUK:

Children in Need have funded a three year transition project. The project will work with young people and their siblings and parents. By providing fun activities and one to one support with transition.

Sport England have funded family support services alongside tandems and trikes to enable families to get out and about together and enjoy cycling in their local area.

Jeans for Genes and Genetic Disorders UK – They have funded ‘Living with Alstrom Syndrome’ film – this can be viewed here http://www.youtube.com/watch?v=iz0WaI9qnso

Thank you to Williams Holidays, who have chosen ASUK to be their charity of the year 2015. This campaign, Coach Seats for Causes will aid our work with families in Devon and Cornwall. You can learn more about Williams Holidays here  http://williams-travel.co.uk/

ASUK Research project – £350,000 was funded by the BIG Lottery fund

The Lottery Funding – Awards for All have also funded our PossAbility volunteering project.

The Sylvia Adams Trust who have contributed towards the ASUK Asian Mentoring Scheme and continue to fund our work through the Breaking down Barriers project.

The Millichope Foundation who continue to help fund our work.

Brunel Manor in Torquay and Torbay Holiday Helpers Network who enabled many families to enjoy a break in Torquay in August 2013 and 2014.

The St. James’s Place Foundation – contribution towards the role of Transition Coordinator.

You can learn more about St. James’ Place Foundation here https://www1.sjp.co.uk/about-st-james-place/our-responsibilities/st-james-place-foundation

Bradford Short Breaks funded £4,875.00  to enable young people from Bradford to have an adventure at the Calvert Trust in the Lake District during October half term 2013

• • David Lunt for running many marathons in aid of ASUK
  • Brian Vasey for running the Virgin London Marathon in 2015
  • Chris White for running many marathons and challenges in aid of ASUK
  • Michelle Hough, her family and the St. Agnes Community who continue to offer support
  • The Lewis family for continuing to organise fundraising events
  • The Vasey family for their continuing support and raising funds
  • Nichola Martland and Stacey Chaplin – For running the London Marathon in April 2012
  • Amy Farmer for running the Bupa 10K Marathon in aid of ASUK
  • The ASUK cycle team who raised over £13,000 cycling from Torbay Hospital to Birmingham Hospital in June 2012
  • Liam Mackin for his fundraising efforts and charity awareness raising

There are so many Trusts, Foundations, Families and Individuals who kindly continue to raise funds for our great cause. This enables are vital work to continue and our charity to grow from strength to strength. A HUGE THANK YOU to you all, you know who you are!

Special Recognition

We would like to give special recognition and thanks to the following individuals and organisations for their dedication: Kay and John Parkinson, For founding the charity in 1998, which has now led to ASUK offering services at such an exceptionally high level.

NHS England, For their continuing support and funding, enabling us to provide high quality support services and NHS medical clinics.

Birmingham Children’s Hospital, For the dedicated care of Alström Syndrome patients and for establishing the World’s first AS multi-disciplinary clinics for children.

The Queen Elizabeth Hospital, Birmingham, For the dedicated care of Adult patients who are affected by Alstrom Syndrome through the AS multi-disciplinary clinics.

Torbay Hospital, For the dedicated care of Alström Syndrome patients and for establishing the World’s first AS multi-disciplinary clinics for adults and passing on their experience to the Queen Elizabeth Hospital who are now facilitating the clinics.