Haris is part of the Alström Syndrome community and is very enthusiastic to bring his knowledge and lived experience to support the Board of Trustees. “I would like to be part of the board because I have Alström so I can use my experience to help families understand what Alström is about. I'm keen to learn and will be able to help and participate in any new research and development taking place. I have studied level 3 Business which involved a lot of financial elements so my knowledge can be helpful when coming to the board.”
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